"[John] wanted to make a difference in the lives of people affected by EDS through peer support and trusted information, a combination that was still often missing at the time. He never charged for those resources. This man made such a difference in so many lives, and he never made a big deal out of it. So we decided, after his passing, to honor his legacy by highlighting his selfless service to the community, because he would never have done that."

— Karina Sturm, Director