The Chronic Pain Partners Post |
Up Close and Personal: Our Team’s Favorite Go-To Support Aids for EDS/HSD
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This month, we wanted to give you a peek into the daily lives of our team members by asking them to share a few of their favorite go-to supportive items for Ehlers-Danlos syndromes (EDS) or hypermobility spectrum disorders (HSD).
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Episode 4 of Chronic Pain Partners' Podcast!
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In this episode, Cassandra and Marcia are joined by Jeannie Di Bon, a movement therapist, educator, author, and founder of The Zebra Club. Jeannie Di Bon developed the Integral Movement Method, an evidence-based approach that integrates rehab,
Pilates and nervous system regulation to help people move…
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Have Your ticket?Get Ready For Our Virtual Screening of the EDS Documentary
“Complicated” May 2, 2026 at 2:00 PM (Eastern Time)
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Eventbrite - EDS Awareness presents Join Our Special Online Screening & Meet The Families from COMPLICATED! - Saturday, May 2, 2026 - Find event and ticket information.
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Guest Piece: Horizontal Parenting: 5 Strategies I Used After Surgery As a Disabled Single Mom
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"I wrote the manual I wish I'd had." One single mother shares what she's learned navigating motherhood with a medically complex child while managing EDS, POTS, MCAS, Sjögren's, and recovery from multiple surgeries.
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Guest Piece: Persistent: A Poem By Jen Jungenberg
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A raw poem by Jen Jungenberg that challenges the idea of resilience, exploring chronic illness, medical trauma, and the mental toll of being a long-term patient.
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Check Out Our Other News For April! |
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On March 29, 2026, the EDS community lost one of our most beloved specialists and longtime champions…
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This May for EDS Awareness Month, the documentary Complicated arrives on Apple TV, highlighting…
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A heartfelt thank you to Karina Sturm as she steps down as Editor-in-Chief of Chronic Pain Partners, honoring her impact on the EDS community.
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New CCI measurements, Patient Researcher Jeevan Mann, Podcast Neurodivergence, Schroth Method, New…
February 01, 2026
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E clusive Spoonie Gift Guide, Ebook Isolation, Holiday Survival Guide The Chronic Pain Partners Post…
December 23, 2025
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Podcast with New EDS Film Producer, Book Chemistry Test, Hypermobility Assessment tool app, Child…
December 01, 2025
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Thanks for reading the Chronic Pain Partners Post! |
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