The Chronic Pain Partners Post |
Chronic Pain Partners Produces New Podcast!
Welcome to EDS Unplugged—a new podcast hosted by Cassandra Campbell and Marcia Brock, diving deep into the realities of living with Ehlers-Danlos syndrome and related conditions. Each episode shines a light on the challenges and triumphs of the EDS community, blending personal
stories, expert insights, and honest conversations. Our very first episode launches in October for Invisible Illness Awareness Month, focusing on what it really means to live with an illness the world often can’t see.
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We are very pleased to announce the first episode of the EDS Unplugged podcast, brought to you by Chronic Pain Partners. In this episode, hosts Cassandra and Marcia speak with Kate Schultz about what we do here at Chronic Pain Partners and living with EDS in the run up to Invisible…
September 28, 2025
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A new study, led by Dr. Cortney Gensemer, marks a genetic breakthrough in hEDS research. The KLK15 variant (p.Gly226Asp) has been identified as a direct disease-causing gene in hypermobile EDS, causing connective tissue dysfunction and immune system
dysregulation.
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Published in ImmunoHorizons, this additional research provides yet another fresh biological insight into hypermobile Ehlers-Danlos syndrome (hEDS), the most common but least understood form of EDS. HEDS is a multi system condition leading to dozens of
comorbid conditions. This study found clear…
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Most people living with Ehlers-Danlos syndrome (EDS) are used to a long and straining path to diagnosis, full of prejudice and gaslighting. Davina Brigant knows this journey all too well. "As far as I remember, during my childhood, I always had some
problems. I was very flexible.
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New EDS Program to Begin in VirginiaUVA Health, an integrated health system and academic medical center in Virginia, will be starting a program for patients with EDS, other hypermobility
disorders, and other connective tissue disorders in the Fontaine Research Park in Charlottesville, VA. Expected in late 2025 or early 2026, the program aims to coordinate care for patients who live within a few hours of Charlottesville. For patients who live further away, the program plans to
partner with local providers to offer guidance, care plans, and support. The UVA Health press release from June 2025 offers more details about the newest addition to the 15 EDS treatment programs in
the US (18 worldwide).
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When host CHristie was not able to walk and talk in 2021, she lost the career she had built as a radio DJ. What began as a personal way to process those changes-recording short reflections on living with Ehlers-Danlos syndrome-has since grown into AWOL
Zebra, a daily podcast that has reached…
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After the "Fourth Wing" book series, Chronic Pain Partners became aware of a new romance novel, "The Chemistry Test", written by Georgina Frankie, which features a character with Ehlers-Danlos syndrome (EDS). In a genre where disabled characters are often
either absent or reduced to stereotypes,…
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Cerebral venous outflow disorders describes a spectrum of conditions related to issues with how fluid…
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September is recognized internationally as Pain Awareness Month. (Look for hashtags…
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Finding respectful, knowledgeable care can be difficult, especially for those living with complex or…
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Upcoming Webinar: EDS Empower Hour — Monday, Nov 10 at 11am ET/10am CT Share that the EDS Empower Hour on November 10 will feature a remarkable guest: Dr. Jessica Eccles, a psychiatrist and researcher at Brighton and Sussex Medical School. Dr. Eccles is internationally recognized for her
pioneering work on the links between hypermobility, neurodivergence, pain, and autonomic dysfunction. This is a rare opportunity to hear directly from one of the leading voices exploring how our connective tissue may influence the brain, emotions, and neurodevelopmental traits like ADHD and autism. 📅 Date: Monday, November 10 at 11am ET
Location: Virtual (Zoom link/registration here)
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Pain & Grief, New EDS Clinic Florida, New Coloring Book, Pediatric Research The Chronic Pain Partners…
August 01, 2025
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New EDS Clinic & Fi, Getting Diagnosed, Complicated is Out!, Pain Meds & Flares, Survey Diagnostic…
May 01, 2025
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Neurodivergence, Autism, Hypersensitivity, Research on EDS and Autism, New EDS Film! The Chronic Pain…
March 01, 2025
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Thanks for reading the Chronic Pain Partners Post! |
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