As we wrap up 2024 and step into 2025, the 501c3 Chronic Pain Partners celebrates another year of providing impactful resources and community-driven content for individuals navigating EDS and HSD. Last year’s content survey revealed interest in topics like managing energy, fatigue and flares and we responded and continue bringing new
resources announced now including a series on neurodiversity and EDS-related gastrointestinal conditions
created by our small volunteer staff. But we need your financial support to continue delivering resources on treatments like articles published this year on prolotherapy and PRP, low dose naltrexone and practical advice for tethered cord reviewed by medical experts. We’re proud to have addressed the emotional aspects of EDS life with articles such as the expose on Clinician-Associated Trauma (CAT) through our 6-part series. These were among the most-read stories of 2024.
Looking Ahead to 2025
We’re building on the momentum of our revamped website, and adding more
tools such as podcasts and a return of webinars with experts. Our 2025 survey is out to vote on what you need most this year. In the new year, we’re embracing the season of fresh starts, new healthy habits, and realistic expectation-setting tailored for EDS life.
Highlights in this January issue:
- The first in a new series exploring the intersection of neurodiversity and hypermobility with deeper dives on autism and ADHD coming soon.
- For those thinking about healthy habits and resolutions,
an article focused on gastrointestinal health, a common yet often misunderstood issue in the EDS community where you’ll discover strategies to take control of your gut health as you prioritize well-being in the new year.
- If you’re a new year planner
and goal setter, check out our article on setting up your own personal customized fatigue scale so you’ll realize it’s time to stop, before the flare strikes with a planning template to determine your specific warning signs!
- A zebra-themed weekly planning tool for prioritizing, without any of the ‘should shaming’ that leaves you feeling overwhelmed.
Let this be the year of empowerment—where we make progress, not perfection, the goal. Remember, you are doing enough,
despite FOMO or a sense of loss in productivity common in chronic illness. Give yourself a permission slip to relax and heal after the holidays. We know EDS is a full-time role requiring a balance of rest and care for oneself year-round. Here’s to a year of deeper resilience, self-advocacy skill development, and enhanced community collaboration! Let’s tackle 2025 together.
Warmly,
The
EDS Awareness Volunteer Media Team
P.S. We’re looking for more writers to join the team.
