Dear Community Member,
Your inbox is probably full of various organizations asking you for money because it’s Giving Tuesday, a movement that unleashes the
power of radical generosity around the world. From volunteering at a local school to helping organize a neighborhood food drive to donating money to a favorite non-profit to offering a smile to another person, no act of generosity is too small. Like many other organizations, Chronic Pain Partners/EDS Awareness is sustained by the generosity of those who believe in
our mission: providing resources, support, and hope to individuals and families affected by Ehlers-Danlos syndrome (EDS), other rare diseases, and chronic pain.
Building on a legacy of activism and curation by co-founder John Ferman,
Chronic Pain Partners/EDS Awareness offers top-quality patient guides, research updates, personal stories, resources, reviews, films, webinars, support group contacts, and so much more. At the heart of the organization are the content creators and volunteers. Almost everyone who works with Chronic Pain Partners/EDS Awareness has EDS or cares for a loved one with EDS, and they call upon their own experiences and knowledge to create the content on our newly redesigned website and on our social media channels. While research can inform what they write, there is another level of expertise and compassion in having lived experience.
If this kind of content is important to you—content written by people with EDS and chronic pain, who are walking, rolling, limping, crutching, and stumbling down
this road with you—please consider including Chronic Pain Partners/EDS Awareness in your holiday or year-end giving.
Your gift can make a real difference to the future of Chronic Pain Partners/EDS Awareness. Our
ambitious plans for 2025 include:
- Incorporating a podcast under the Chronic Pain Partners umbrella. Look for new episodes to appear in our newsletter and on our website!
- Bringing back the webinars! Our successful webinars need a dedicated person to schedule interesting speakers on current topics, coordinate the logistics of a webinar, and edit and produce them at the high quality our followers deserve. If this is a role you think you’d be successful at, check out
the job description for more details.
- Expand our coverage, and in order to do that, we need more writers. If you’d be interested in writing for Chronic Pain Partners/EDS Awareness, this job
description can give you more information.
- Keep our social media channels up to date with exciting content that is relevant to our readers’ lives and experiences.
- Look for more ways to include filmmaking as a core part of the Chronic Pain Partners/EDS Awareness content portfolio.
- Make all content on the website accessible for everyone.
- Continue to create and support content
aimed at helping people through the various stages of Ehlers-Danlos syndrome, with other rare diseases, and, with chronic pain.
On this Giving Tuesday, please consider making a gift to Chronic Pain Partners/EDS Awareness. Any amount truly does help us keep going and know that our work is making a difference.
DONATE NOW
If a monetary gift isn’t possible for you (and we definitely understand the financial limitations of a chronic illness), you can
still help by:
- Following us on Facebook, Instagram, and BlueSky.
- Sharing our posts and articles with your own social media networks (including those not listed above)—use #GivingTuesday and #ChronicPainPartners so we can see it too!
- Share our articles and information with your medical providers.
- Visit our website and leave your thoughts on any articles that inspire
you!
- Contact us if you’re interested in volunteering for Chronic Pain Partners.
Thank you for your compassion and support.
Sincerely,
Kate Schultz
Chronic Pain Partners/EDSAwareness Media Team
kate@chronicpainpartners.com
P.S. The giving link is available all year round. Give now or give later—either
way, our team thanks you for your generosity and spirit.
