Official Selection Champion Film Salon International Film Festival Screening: September 28 – 30, 2023, Location: The Nack Theater, 6711 Oak Street, Frisco, TX 75033, Tickets and more info: https://www.cfsiff.com/event
Netflix has just released the highly anticipated documentary, "Take Care of Maya," which unveils the…
Research & Resources
Tenascin-X as a causal gene for classical-like Ehlers-Danlos syndrome
"In this review, we described the molecular mechanisms of pain caused by TNX deficiency as well as by mutation of
collagens mimicking the characteristics of EDS, the function of TNX as a tumor suppressor, and the involvement of TNX in fibrosis."
Penn State College of Medicine is seeking U.S. participants with Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD) for a research survey.
This study is to better understand the economic impact of EDS and HSD. The questionnaire should take approximately 30 minutes to complete and allows you to save your work and complete
it in multiple sessions. It is recommended that you gather your 2022 medical expenses before you begin.
The economic impact of managing EDS and HSD is both underappreciated and significant. Patients frequently bear enormous out-of-pocket costs for medical appointments, mobility aids and
physical therapy not covered by insurance plans. Special diets and supplements recommended for many with EDS are prohibitively expensive.
This study was approved by the Penn State College of Medicine’s Institutional Review Board (IRB) and funded in part by the Ehlers-Danlos Syndrome Research Foundation.
